Provides support services to individuals living with Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD).
The Ehlers-Danlos Society supports the development of effective and equitable EDS and HSD therapies and work collaboratively to improve the lives of individuals affected by EDS and HSD.
The following services are offered:
Find a Doctor/Therapist: The Ehlers-Danlos Society provides a global database of EDS and HSD-friendly specialists across various disciplines. The database is populated by professionals submitting their information directly to the site, supporting access to care and management for patients worldwide. Access the list
here.
Find a Support Group: The Ehlers-Danlos Society maintains a global directory of support groups and charitable organizations for individuals with EDS and HSD, offering local information, resources, and community support. Access the the list
here.
Online Communities: Connect with others living with EDS and HSD through online message boards. These are welcoming spaces for sharing experiences, asking questions, and building community across a range of supportive groups. For a list of online communities,
click here.
More information, resources, and webinars are available on the website.
Public email:
echo@ehlers-danlos.com
Website:
https://www.ehlers-danlos.com
Cost:
No cost
Availability
Service area:
Province-wide
+ show cities
Service area cities:
100 Mile House, Abbotsford, Agassiz, Aldergrove, Alert Bay, Alexis Creek, Anahim Lake, Anmore, Armstrong, Ashcroft, Atlin, Bamfield, Banff, Barriere, Bella Bella, Bella Coola, Black Creek, Blue River, Boston Bar, Bowen Island, Brentwood Bay, Burnaby, Burns Lake, Cache Creek, Calgary, Campbell River, Canmore, Castlegar, Cathedral Grove, Cawston, Chase, Chemainus, Cherryville, Chetwynd, Chilliwack, Christina Lake, Clearwater, Clinton, Cobble Hill, Comox, Coombs, Coquitlam, Cortes Island, Courtenay, Cranbrook, Crawford Bay, Creston, Cumberland, Daajing Giids (Queen Charlotte City), Dawson Creek, Dease Lake, Deep Bay, Delta, Denman Island, Duncan, Edgewood, Elkford, Enderby, Fanny Bay, Fernie, Fort Langley, Fort Nelson, Fort St. James, Fort St. John, Fraser Lake, Fruitvale, Gabriola Island, Galiano Island, Gibsons, Gitlaxt'aamiks (New Aiyansh), Golden, Gold River, Grand Forks, Granisle, Greenwood, Hanceville, Harrison Mills, Hazelton, Hope, Hornby Island, Horne Lake, Houston, Hudson's Hope, Invermere, Kamloops, Kaslo, Kelowna, Keremeos, Kimberley, Kitimat, Kyuquot, Ladner, Ladysmith, Lake Country, Lake Cowichan, Langford, Langley, Lantzville, Lethbridge, Lillooet, Lions Bay, Logan Lake, Long Beach, Lumby, Lytton, Mackenzie, Maple Ridge, Masset, Mayne Island, McBride, Merritt, Merville, Midway, Mill Bay, Mission, Nakusp, Nanaimo, Nanoose Bay, Nelson, New Denver, New Westminster, Nitinaht, North Delta, North Saanich, North Vancouver, Okanagan Falls, Oliver, Osoyoos, Oyama, Parksville, Peachland, Pemberton, Pender Harbour, Pender Island, Penelakut Island, Penticton, Pitt Meadows, Port Alberni, Port Alice, Port Coquitlam, Port Hardy, Port McNeill, Port Moody, Powell River, Prince George, Prince Rupert, Princeton, Quadra Island, Qualicum Beach, Quathiaski Cove, Quesnel, Revelstoke, Richmond, Riske Creek, Rock Creek, Rossland, Saanich, Saanichton, Salmo, Salmon Arm, Salt Spring Island, Sardis, Saturna Island, Sayward, Scotch Creek, Sechelt, Shawnigan Lake, Sicamous, Sidney, Skidegate, Slocan, Smithers, Sointula, Sooke, Sorrento, South Surrey, Sparwood, Spences Bridge, Squamish, Stewart, Summerland, Sun Peaks, Surrey, Tahsis, Tatla Lake, Telkwa, Terrace, Tofino, Trail, Tsawwassen, Tumbler Ridge, Ucluelet, Valemount, Vancouver, Vanderhoof, Vernon, Victoria, West Kelowna, West Vancouver, Whistler, White Rock, Williams Lake, Winlaw, Witset, and Yale